New year, New pump, Same reflections
2026 has started off with a bang, and I'm just getting around to sharing my new Remunity Pro Pump experience.
For 2026 my word of the year is “expand”, and I mean it in all definitions of the word— I want to expand and make room for more. More easiness. More joy. More truth. More heartfelt moments. More minutes to take it all in. I want to expand my growth, both inwardly and outwardly.
I want this year to be about taking up space without hesitation or fear of stepping on toes or making people uncomfortable. I want to expand and allow myself to feel more than one feeling at a time. I want to expand my relationships naturally, and not try to push or pull them one way or another.
Expansion in my mind is all encompassing, and I want to make sure that 2026 is a year of expansion.
Already this year I feel like I have had to embrace the expansion that 2026 is throwing at me. I had to expand my capacity for uncomfortable and give myself grace with the changes that have happened this year, and its only February!
I transitioned to the Remunity Pro pump.
As with anything, I know that change comes with the feeling of being uncomfortable, that’s why people hate change. I’ve prided myself on being adaptable, and this transition to the Remunity Pro has been nothing short of expanding that threshold. If you’re new here, I’ve been on the same pump for the last 5 years, and I have been reluctant to change pumps because I firmly believe, if it’s not broken, don’t fix it.
With much grumbling and complaining, I made the switch in January and I will say (much to United Therapeutics’ delight) I honestly don’t hate it as much as I expected. This pump is the updated version of the (failed, ha) original Remunity pump, and it has been much easier to adapt to than I expected.
Things I like about it:
The pump is much smaller and clips to my pants and leggings, not having to wear a pump belt has upped my outfit game by 100%. And I love that it’s light. I sleep with it clipped to my shorts and don’t notice it at all.
Things I don’t like:
Having to carry another phone around is really annoying, I already have a hard enough time carrying my actual phone around. The Remunity Pro’s remote is an actual android phone, which means carrying another phone around is the new norm.
But what I’ve found is that the bluetooth connectivity is a non-issue for me. I’ve heard my phriends on the old pump say that they’ve had a lot of issues with the bluetooth on the old remotes.
I’ve also found that I don’t need to carry it around everywhere. I only bring it with me if I’m planning to be out of my house for an extended period of time, or if where I’m going would be inconvenient to leave if my pump started beeping. Otherwise it lives on its stand, on my nightstand.
I have definitely had to expand my capacity for being adaptable with this new pump, and I think I’ve done a pretty good job so far. There are still kinks like anything new would be, but it hasn’t been world-ending like I feared it would be.
I am planning to do a full podcast episode on the transition, so stay tuned.
(No, I have not forgotten the podcast!)
I have the same reflections, with expanded views.
This expansion year has made me stop to feel, embrace and enjoy the moment. Our life at the end of 2025 was a complete clusterf because we decided to move houses right before the holidays, and I feel like I have been hosting people in our new house for the last 12 weeks straight. I am thoroughly exhausted, but completely filled. I love to host.
I have stopped more in 2026 to enjoy the moment I’m in, than I think I ever have in my entire life. I think I’m just remembering how precious these real life moments are with our people, and how lucky I am to live a life I once prayed for, even if it looks different than I imagined. We are so blessed, and my cup runneth over.
I am the healthiest I’ve been since diagnosis (thanks Remodulin + Winrevair) and I am more present than I have been in years. I feel like I’m thriving instead of just surviving. I feel like this is an issue for many people: most people are living a life, but not truly living, they’re just going through the motions.
I feel like with a diagnosis like PAH and knowing the progressiveness of it, as a patient, you’re always waiting for the next shoe to drop. I think my expansion mindset has reminded me to stop fearing or anticipating what’s next, and make room to expand the joy I’m currently feeling instead.
Already in 2026 I have spoken at two national conferences with 200+ people at each event, and I got my first standing ovation!
I posted a reel recently about “What I would tell recently diagnosed, 27 year old, sitting in the hospital Gerry” and what I would say is, “life is going to be better than you could ever imagine.”
Newly diagnosed Gerry couldn’t see herself outside the four walls of that hospital room, she was scared that she wouldn’t get a future, that she’d never put her feet in the sand or see the ocean again, that she wouldn’t see her kids grow up and that she wouldn’t see herself turn 30. Newly diagnosed Gerry had no idea what life God had in store for her, but she definitely didn’t imagine standing on a stage looking out at 200+ people giving her a standing ovation.
And as it happened, I stood still, let the expansion happen and just took a minute to take it all in, because I am so proud of that girl for digging her heels in, not giving up when it got hard and doing the damn thing even when she was scared.
God has been so, so faithful and He’s been so, so good. Life is more abundant than I could ever imagine, and I just want to make room for that fullness and feel it deeply.
You just never know how much time you’re going to get here on Earth so you might as well take it all in.
I hope you got something from this.
I’m not sure what 2026 will throw at me, but I hope that you have gotten something from this long, rambling blog post.
My new plan for the year is to write. I want to write down long, expanded versions of my thoughts here on this blog for you, The Rare Ones. And I will do podcast episodes on the same topics just done differently. And you will know what I’m posting here if you sign up for emails, and I will highlight what I’m posting to my Instagram!
I hope this makes sense and can streamline what you guys what from me, which is more, expanded content and details, cause you guys always want the details.
Here’s to you Rare Ones, may this year be filled with happiness, joy and expansion in all ways.
g.