In this heartfelt episode of Rarely Typical, I sit down with my diagnosing doctor, Dr. Hountras, to share both sides of the journey that led to my pulmonary arterial hypertension (PAH) diagnosis. We dive into how divine timing played a role—how God had everything in motion long before either of us arrived in Colorado. From God’s intricate planning to the importance of collaborative care, this conversation offers insight into the emotional and spiritual layers of rare disease diagnosis and why building a trustworthy doctor-patient relationship matters more than ever. Whether you're newly diagnosed, a caregiver, or navigating chronic illness, this episode will remind you that you're not alone—and that your story is part of something bigger.
Key Takeaways:
Faith and divine timing can guide even the most uncertain medical journeys.
The doctor-patient relationship should feel like a partnership—not a power imbalance.
It’s possible to find providers who truly listen, care, and connect with your experience.
Sharing your story can open unexpected doors—for healing, for advocacy, and for others.
Resources:
📌 Pulmonary Hypertension Association (PHA) – Find specialists, patient resources, and education: https://phassociation.org
📌 Find a PH Care Center – Accredited centers with expertise in PH: https://phassociation.org/phcarecenters
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